Great Expectations

I am not sure why I waited until this morning to discuss news from Chloe's teacher with Anthony. Mabybe it is because I did not want to speak it out loud. Mrs. Berber asked for us to make time for an updated IEP due to Chloe now getting services in school instead of home. Also, that goals were going to have to be reevualuated due to Chloe not meeting the ones that were orginally given. She stated that we would need to make the goals more appropraite meaning more simple. It is frustrating becasue Chloe's condition is so rare that we, as parents, have no idea what to expect. For example, if we had a child with downs, or Cerberal Palsy, we could at least have some idea, but even the specialized doctors that we see have very little answers. we are just encouraged that she is she making progress. Don't assume that I am complaining for I am greatful for our outgoing and fun child, but it would be nice to have some idea of what to expect for her..for us. So we take joy in the simple things she does,

Thoughts of the day

Today went by so fast and I really don't remember spending much time with my daughter today. We played outside and then had dinner out but nothing really quality stood out to me. I have to say that this makes me sad because if nothing stands out as memorable to me does it to her. I often worry about somthing happening to me and her growing up without a mother and so I want everyday to be special and meaningful. What a stress inducing way to live.